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Abatacept
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Abatacept
Hi I was wondering if anyone else has been told that they have got to have infusions of these at home because of stock problems? If so, have you started them yet? Thank you
Hi I was wondering if anyone else has been told that they have got to have infusions of these at home because of stock problems? If so, have you started them yet? Thank you
debjw
in
NRAS
2 days ago
Abatacept infusions
As many others on
Abatacept
will know we are swapping onto infusions due to shortages. Lloyds called me on Monday evening regarding swapping & went through the usual personal questions then asked how many I had left at which point we lost the connection.
As many others on
Abatacept
will know we are swapping onto infusions due to shortages. Lloyds called me on Monday evening regarding swapping & went through the usual personal questions then asked how many I had left at which point we lost the connection.
Otto11
in
NRAS
2 days ago
Abatacept Shortage?
Hi, I've been on
abatacept
since last year as a subcutaneous injection weekly at home. I've had a message from Lloyds Homecare who provide it saying that the manufacturer has let them know of an imminent shortage. Lloyds are going to provide it by infusion at home instead.
Hi, I've been on
abatacept
since last year as a subcutaneous injection weekly at home. I've had a message from Lloyds Homecare who provide it saying that the manufacturer has let them know of an imminent shortage. Lloyds are going to provide it by infusion at home instead.
Gillybob19
in
NRAS
11 days ago
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Abatacept problem
I have been started on
Abatacept
with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the company so I have missed the doses. I have rung them and they have promised an appointment but not given one.
I have been started on
Abatacept
with one lesson in its use. The next one to check I could cope was cancelled three weeks ago and I have not heard from the company so I have missed the doses. I have rung them and they have promised an appointment but not given one.
Shonkie
in
NRAS
1 month ago
Abatacept shortage
I posted a couple of weeks ago that I was going to start
Abatacept
as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
I posted a couple of weeks ago that I was going to start
Abatacept
as the Tocilizumab didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
Hiphopsix
in
NRAS
1 month ago
Travel refrigeration
Hi, I am travelling to Cuba in April and need to take 2
abatacept
injections with me. Has anyone got any experience with this and how to overcome this obstacle. HELP!!!!
Hi, I am travelling to Cuba in April and need to take 2
abatacept
injections with me. Has anyone got any experience with this and how to overcome this obstacle. HELP!!!!
Djohnston1971
in
NRAS
4 months ago
Abatacept
Good morning, I have been on Rituximab for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to
Abatacept
.
Good morning, I have been on Rituximab for a number of years , but having a really bad side effects now , saw Rhuemy a few weeks ago and she said that I might be switched to
Abatacept
.
Jillyanne
in
NRAS
6 months ago
Teeth dam teeth
THEN the dreaded toothache and had to come of methotrexate and
Abatacept
2 weeks before and 2 weeks after because of no appointments it ended being 6 weeks....... I'd started to feel a bit better and have now got a very painful tooth on the otherside of my face.
THEN the dreaded toothache and had to come of methotrexate and
Abatacept
2 weeks before and 2 weeks after because of no appointments it ended being 6 weeks....... I'd started to feel a bit better and have now got a very painful tooth on the otherside of my face.
Pasjc
in
NRAS
2 months ago
Bronchiectasis and biologics
I have had a number of chest infections in the last year and was given a rather scary warning about the dangers of this while on
Abatacept
. What experience have other people had please?
I have had a number of chest infections in the last year and was given a rather scary warning about the dangers of this while on
Abatacept
. What experience have other people had please?
Shonkie
in
Lung Conditions Community Forum
5 months ago
abatacept
hello, I’m about to start
abatacept
(Orencia) and would like to know if anyone here uses
abatacept
in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen.
hello, I’m about to start
abatacept
(Orencia) and would like to know if anyone here uses
abatacept
in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen.
Emye343
in
NRAS
8 months ago
Frustration
Following on from the post a couple of days ago regarding the shortage of
abatacept
and the link to the National Patient Safety Alert regarding shortages, I phoned our local rheumy help line. Initially, I was number 14 in the queue but decided to hang on.
Following on from the post a couple of days ago regarding the shortage of
abatacept
and the link to the National Patient Safety Alert regarding shortages, I phoned our local rheumy help line. Initially, I was number 14 in the queue but decided to hang on.
nanny_bee71
in
NRAS
9 days ago
Abatacept
Does anybody know how long
abatacept
can be out of the fridge and still be useable? Thanks.
Does anybody know how long
abatacept
can be out of the fridge and still be useable? Thanks.
MerielPB
in
NRAS
9 months ago
Abatacept and coming off prednisolone
Also is anyone else on
Abatacept
and roughly how long did it take for them to work? I know they’re both open ended questions but just as a guide. Thank you x
Also is anyone else on
Abatacept
and roughly how long did it take for them to work? I know they’re both open ended questions but just as a guide. Thank you x
debjw
in
NRAS
9 months ago
When to restart Biologics after Covid Infection
Should have injected
Abatacept
at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting biologics after Covid infection and Antiviral treatment? Is it the usual post infection rule of “when you feel better”?
Should have injected
Abatacept
at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting biologics after Covid infection and Antiviral treatment? Is it the usual post infection rule of “when you feel better”?
Intheend
in
NRAS
7 months ago
ra associated eye ulcers
I’m into my second month of
abatacept
injections which don’t seem to be helping yet. I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to leflunomide which had seriously worsened my congenital bicuspid aortic valve .
I’m into my second month of
abatacept
injections which don’t seem to be helping yet. I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to leflunomide which had seriously worsened my congenital bicuspid aortic valve .
Emye343
in
NRAS
5 months ago
covid ~ anti virals
On
Abatacept
and Mycophenolate. Can I ask what you have all been doing? Know we are all different but may have to make a judgement call myself. There’s no drug interaction between the meds and anti viral..Thank you x
On
Abatacept
and Mycophenolate. Can I ask what you have all been doing? Know we are all different but may have to make a judgement call myself. There’s no drug interaction between the meds and anti viral..Thank you x
RachelD1972
in
NRAS
8 months ago
In hospital again
I started
abatacept
. A few days before I felt a bit fluey, I mentioned to the nurse when she demonstrated the injection but she didn't seem concerned. Next week feeling a bit worse but variable then one day felt awful. This pattern continued.
I started
abatacept
. A few days before I felt a bit fluey, I mentioned to the nurse when she demonstrated the injection but she didn't seem concerned. Next week feeling a bit worse but variable then one day felt awful. This pattern continued.
wilbertjellyfish
in
NRAS
7 months ago
Travelling with Injections
I am on an
Abatacept
Orencia injection and I was just looking for some advice. Due to the injection being weekly I will have around 20/24 pens to dispose of.
I am on an
Abatacept
Orencia injection and I was just looking for some advice. Due to the injection being weekly I will have around 20/24 pens to dispose of.
Puttingtheraintravel
in
NRAS
7 months ago
medication after open heart surgery
The rheumatologist wants me on
abatacept
. I’m hoping there might be someone on this site in a similar position with insights to share!
The rheumatologist wants me on
abatacept
. I’m hoping there might be someone on this site in a similar position with insights to share!
Emye343
in
NRAS
8 months ago
RA and live flu vaccine
I'm currently on leflunamide, having stopped
Abatacept
about 6 weeks ago and I had my flu vaccine about 10 days ago. Many thanks.
I'm currently on leflunamide, having stopped
Abatacept
about 6 weeks ago and I had my flu vaccine about 10 days ago. Many thanks.
Julia31
in
NRAS
9 months ago
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