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testing for IL6
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Mstiles
in
PMRGCAuk
2 months ago
GCA-Diagnosis
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
23 days ago
Giant Cell Arteritis
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
LRevell
in
PMRGCAuk
4 months ago
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Jaw locking while tapering for GCA
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
Bummed24
in
PMRGCAuk
2 months ago
giant Cell
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
LRevell
in
PMRGCAuk
2 months ago
Trip to the Er/ED
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Lenore58
in
PMRGCAuk
2 months ago
Melanoma Surgery while taking Actemra and Prednisone
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
Pamk1949
in
PMRGCAuk
4 months ago
Ongoing headaches
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Bummed24
in
PMRGCAuk
4 months ago
Tyenne /Tocilizumab
Hi just to say I be just received a letter to say I’m changing from
actemra
to this brand. Hopefully a lower price will make it an option for more people.
Hi just to say I be just received a letter to say I’m changing from
actemra
to this brand. Hopefully a lower price will make it an option for more people.
Devoid
in
PMRGCAuk
3 months ago
Actemra and Extremely Fast Taper off of Prednisone
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
newsusy
in
PMRGCAuk
4 months ago
Antibiotic and Actemra
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
ILbbHpmr
in
PMRGCAuk
2 months ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Kaaswinkel
in
PMRGCAuk
13 days ago
Any advice to get back on track please?
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
Happyexplorer
in
PMRGCAuk
3 months ago
Facial Numbness
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
Lenore58
in
PMRGCAuk
2 days ago
Actemra infusions approved.
I can still say no to
Actemra
. :)
I can still say no to
Actemra
. :)
Bummed24
in
PMRGCAuk
4 months ago
GCA Temporal/ Arteritis
I’m on
Actemra
injection only. It makes me feel a little woozy! Has anyone else had this feeling?
I’m on
Actemra
injection only. It makes me feel a little woozy! Has anyone else had this feeling?
LRevell
in
PMRGCAuk
5 months ago
IV infusion Actemra vs. SQ
/kg. )
Actemra
infusions which have helped a bit, but I still have scalp tenderness, intermittent headaches, ear and jaw soreness, tongue just a bit sore, and elevated tinnitus. One rheumatologist thought irregular absorption rates with SQ would make it less potent than the infusion.
/kg. )
Actemra
infusions which have helped a bit, but I still have scalp tenderness, intermittent headaches, ear and jaw soreness, tongue just a bit sore, and elevated tinnitus. One rheumatologist thought irregular absorption rates with SQ would make it less potent than the infusion.
Bummed24
in
PMRGCAuk
3 days ago
Off meds: is 13 lucky?
Pred came off in 2020 and have been on just
Actemra
. Tapered that to monthly and last dose was April 17th. So far so good. I wanted to say this site and all you lovely folks has been a Godsend along the journey. You taught me so much about my diseases and about myself!
Pred came off in 2020 and have been on just
Actemra
. Tapered that to monthly and last dose was April 17th. So far so good. I wanted to say this site and all you lovely folks has been a Godsend along the journey. You taught me so much about my diseases and about myself!
PMR2011
in
PMRGCAuk
9 days ago
GCA Tapering
My second infusion of
Actemra
will happen in a week. My rheumatologist had originally suggest a taper of 50mg. x two weeks, then 40mg. x 2 weeks, then 35 mg x two weeks with monthly
Actemra
infusions . Way too fast, right?! I'll be seeing him next week.
My second infusion of
Actemra
will happen in a week. My rheumatologist had originally suggest a taper of 50mg. x two weeks, then 40mg. x 2 weeks, then 35 mg x two weeks with monthly
Actemra
infusions . Way too fast, right?! I'll be seeing him next week.
Bummed24
in
PMRGCAuk
3 months ago
Tapering Pred from 2mg....to 1.5 or 1mg~?
To complete the picture, I do take an injection of
Actemra
weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall due to other health issues and being off my
Actemra
. Since September 2023, I've gone down from 60mg per day with no issue.
To complete the picture, I do take an injection of
Actemra
weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall due to other health issues and being off my
Actemra
. Since September 2023, I've gone down from 60mg per day with no issue.
Grammy80
in
PMRGCAuk
3 months ago
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