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Experiences with
Autoimmune hepatitis (AIH)
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PBC/AIH
Hi I habe PBC crossovered with
AiH
. I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ?
Hi I habe PBC crossovered with
AiH
. I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ?
She-66
in
British Liver Trust
5 months ago
PBC/AIH
Hi I habe PBC crossovered with
AiH
. I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ?
Hi I habe PBC crossovered with
AiH
. I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ?
She-66
in
PBC Foundation
5 months ago
Liver disease, mast cells and antihistamine
Does anyone out there no more about whether antihistamines have been tried as a treatment for PBC or
AIH
?
Does anyone out there no more about whether antihistamines have been tried as a treatment for PBC or
AIH
?
Readlots
in
PBC Foundation
2 months ago
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PBC/AIH
hi I have pbc/
aih
and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore one but then turned in bed last night and simply twisted the other one and am proper hobbling today !
hi I have pbc/
aih
and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore one but then turned in bed last night and simply twisted the other one and am proper hobbling today !
She-66
in
PBC Foundation
2 months ago
Triple Trouble and Tacrolimus
58, diagnosed w/
AIH
IN 2002 & multi auto-immune (Crohn’s, Thyroid, Arthritis, Neuropathy +++)and then added PBC overlap officially in 2020, same time as Prednisone stopped controlling
AIH
. Added Irso for PBC and Tacrolimus as salvage treatment for
AIH
.
58, diagnosed w/
AIH
IN 2002 & multi auto-immune (Crohn’s, Thyroid, Arthritis, Neuropathy +++)and then added PBC overlap officially in 2020, same time as Prednisone stopped controlling
AIH
. Added Irso for PBC and Tacrolimus as salvage treatment for
AIH
.
Gardengrl
in
PBCers Organization
5 months ago
Tooth extraction
I have
AIH
and need a back tooth extracted. Has anyone with
AIH
had this done and did it have to be in hospital ?
I have
AIH
and need a back tooth extracted. Has anyone with
AIH
had this done and did it have to be in hospital ?
HEZA
in
British Liver Trust
8 months ago
discomfort under ribs
By the way I have IBS
AIH
/ PBC and Barrett’s oesphagus. Thanks
By the way I have IBS
AIH
/ PBC and Barrett’s oesphagus. Thanks
Suecong
in
British Liver Trust
20 days ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Sandpiperx
in
PBC Foundation
6 months ago
bilirubin
i have pbc/
aih
…. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/
aih
…. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
British Liver Trust
7 months ago
bilirubin
i have pbc/
aih
…. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/
aih
…. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
PBC Foundation
7 months ago
Memory
Hi My wife has
AIH
B of the liver and is taking 3mg of corticosteroids per day. We have noticed a decline in memory over the past few years we have visited the doctors no sign of Alzheimer’s or Dementia they say. Just wondering if this is common with the condition or medication. Many thanks
Hi My wife has
AIH
B of the liver and is taking 3mg of corticosteroids per day. We have noticed a decline in memory over the past few years we have visited the doctors no sign of Alzheimer’s or Dementia they say. Just wondering if this is common with the condition or medication. Many thanks
ShevBoy
in
British Liver Trust
5 months ago
high temperatures?
Diagnosed with
AIH
in 2018, only real symptom was terrible fatigue. Fibrosis 5-6 but compensated. On Mycophenolate still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later.
Diagnosed with
AIH
in 2018, only real symptom was terrible fatigue. Fibrosis 5-6 but compensated. On Mycophenolate still, pred for 4 years, now discontinued. Generally well until 3weeks ago, I got a kidney infection after a UTI. One IV dose of antibiotics and 3 oral doses later.
Sanddeckchairs
in
British Liver Trust
2 months ago
AIH and the Mirena Coil
What i’m trying to say is does anyone with
AIH
have any experience with the Mirena coil that can reassure me that everything is okay. Thank you, Maddy
What i’m trying to say is does anyone with
AIH
have any experience with the Mirena coil that can reassure me that everything is okay. Thank you, Maddy
gingergymnast246
in
British Liver Trust
3 months ago
AIH links to Covid vaccine?
I have been doing research as you do for better or worse when you are newly diagnosed in my case
AIH
I came across Covid linked articles What are people’s thoughts
I have been doing research as you do for better or worse when you are newly diagnosed in my case
AIH
I came across Covid linked articles What are people’s thoughts
DebbyJ1
in
British Liver Trust
9 months ago
2nd Liver Biopsy result
I have
AIH
. Hope you are all doing well & are coping ok Take care ♥️
I have
AIH
. Hope you are all doing well & are coping ok Take care ♥️
Bigbluemonkey
in
British Liver Trust
3 months ago
PBC and AIH
Hi, I was diagnosed earlier this year with both PBC and
AIH
from blood tests. I then had a biopsy which confirmed but have been told the PBC is not currently active so only being treated for
AIH
at the moment.
Hi, I was diagnosed earlier this year with both PBC and
AIH
from blood tests. I then had a biopsy which confirmed but have been told the PBC is not currently active so only being treated for
AIH
at the moment.
Poppyskittens
in
British Liver Trust
9 months ago
Blue Badge
Hoping this might help others I have recently being diagnosed
AIH
F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
Hoping this might help others I have recently being diagnosed
AIH
F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
DebbyJ1
in
British Liver Trust
9 months ago
Looking for advice to deal with pain and stiffness related to AIH.
I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's suspected
AIH
.
I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's suspected
AIH
.
PeterStewart
in
British Liver Trust
18 days ago
PBC, now cirrhosis
Gastro recommended Budesonide steroids incase it was
AIH
overlap for 3 months. Left me on them for 6 months and my face to face apt after 4 yrs ! Kept being cancelled. In November my ALT jumped to 109. Eventually saw him a month ago and ALT was 250 !
Gastro recommended Budesonide steroids incase it was
AIH
overlap for 3 months. Left me on them for 6 months and my face to face apt after 4 yrs ! Kept being cancelled. In November my ALT jumped to 109. Eventually saw him a month ago and ALT was 250 !
Beatrice110924
in
Sjogren's Support
4 months ago
Feeling fed up
Second time seeing specialist and apart from signs in liver biopsy pointing to
AIH
the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated.
Second time seeing specialist and apart from signs in liver biopsy pointing to
AIH
the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated.
MrMidnight2021
in
British Liver Trust
8 months ago
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