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Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
16 days ago
Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
23 days ago
Shock diagnosis
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Atrial Fibrillation Support
3 months ago
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Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
3 months ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
4 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
4 months ago
clotting whilst on warfarin for clots in lungs.
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
130396
in
MPN Voice
4 months ago
8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
5 months ago
A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
5 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
5 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
7 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
7 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
7 months ago
Anticoagulation Therapy
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
TracyAdmin
Partner
in
AF Association
8 months ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
9 months ago
heparin innohep Uk
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
Kev667
in
Hughes Syndrome APS Forum
10 months ago
Lupron Injection Site Pain
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Yzinger
in
Advanced Prostate Cancer
10 months ago
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
3 days ago
adalimumab side effects
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Nannalyn
in
NRAS
8 days ago
Cellulite
Can underactive thyroid cause really bad cellulite on the inside of the thighs? It is travelling down almost to my knees, one thigh appears worse than the other. I'm not a big person. I'm only age 57 but my skin honestly looks like that of a 70 year old. I did read somewhere that it could cause it,
Can underactive thyroid cause really bad cellulite on the inside of the thighs? It is travelling down almost to my knees, one thigh appears worse than the other. I'm not a big person. I'm only age 57 but my skin honestly looks like that of a 70 year old. I did read somewhere that it could cause it,
shakira10
in
Thyroid UK
11 days ago
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