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Elahare
I am a 12 year survivor currently on Elahare. Just had my fourth round of treatment and noticed that my CA125 has gone up. I am afraid that I will be taken off and pout on Doxil. I really don’t want to lose my hair again. Anyone in a similar situation? Any information is appreciated. Stay strong my ladies
I am a 12 year survivor currently on Elahare. Just had my fourth round of treatment and noticed that my CA125 has gone up. I am afraid that I will be taken off and pout on Doxil. I really don’t want to lose my hair again. Anyone in a similar situation? Any information is appreciated. Stay strong my ladies
yo207
in
My Ovacome
20 days ago
Moving on from Xeloda
sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but typical for lobular my CT scan showed practically disease… such that then I had to get a PET scan to confirm that… that seems also not to show anything
sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but typical for lobular my CT scan showed practically disease… such that then I had to get a PET scan to confirm that… that seems also not to show anything
Bettybuckets
in
SHARE Metastatic Breast Cancer
1 month ago
I am so affraid :(
I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 month off during DVT and covid and so on… mom is vomiting aprox 2 month…start with 1-2 times a week now after every food… CT done no obstructions.. we were affraid that because of vomiting her hemoglobin will be very low..
I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 month off during DVT and covid and so on… mom is vomiting aprox 2 month…start with 1-2 times a week now after every food… CT done no obstructions.. we were affraid that because of vomiting her hemoglobin will be very low..
Inguc_is
in
My Ovacome
6 months ago
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i am so scared
my mom are going to hard times… all the time she get carbo and taxol till she didnt have shock to carbo and they start give hee doxil… red devil which made her so ill after first chemo she get lower stomack blockage and surgery to replace it… that uclers and in october trombs in legs …seems that it
my mom are going to hard times… all the time she get carbo and taxol till she didnt have shock to carbo and they start give hee doxil… red devil which made her so ill after first chemo she get lower stomack blockage and surgery to replace it… that uclers and in october trombs in legs …seems that it
Inguc_is
in
My Ovacome
7 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
7 months ago
constant flu
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
Inguc_is
in
My Ovacome
8 months ago
What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
9 months ago
First recurrence
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Driebergen
in
My Ovacome
9 months ago
positive vibes needed :(
my mom… have ovarian cancer since 2017, till 2021 in remission, affer each summer carbo taxol and 6 month off… that this may she has shock from palitaxel and they give her only taxol… after 3 rounds ct shows some mts. Smaller some bigger they swhiced to doxil in june, after 2 weeks from first influstion
my mom… have ovarian cancer since 2017, till 2021 in remission, affer each summer carbo taxol and 6 month off… that this may she has shock from palitaxel and they give her only taxol… after 3 rounds ct shows some mts. Smaller some bigger they swhiced to doxil in june, after 2 weeks from first influstion
Inguc_is
in
My Ovacome
9 months ago
bone met pain or something else ?
Hi group, Please can someone please help me out? Anything! Question about inner thigh pain. My mom started Doxil this June after new spots appeared with Xeloda after 1 full year. This July she broke her vertebrae (t4) this was a spot where the cancer showed up and she had a fall in the meantime
Hi group, Please can someone please help me out? Anything! Question about inner thigh pain. My mom started Doxil this June after new spots appeared with Xeloda after 1 full year. This July she broke her vertebrae (t4) this was a spot where the cancer showed up and she had a fall in the meantime
Maraki
in
SHARE Metastatic Breast Cancer
10 months ago
doxil, do it help you?
My mom have stomach obstruction operation on 14.07( 2 weeks after 1st doxil influsion) now she is recovering her last chemo was 16.06 than 14.07 surgery and now on 17.08’she will get doxil again.. i am so affraid what will be if after first influstion was this obstraction that mean it doesnt work? Why
My mom have stomach obstruction operation on 14.07( 2 weeks after 1st doxil influsion) now she is recovering her last chemo was 16.06 than 14.07 surgery and now on 17.08’she will get doxil again.. i am so affraid what will be if after first influstion was this obstraction that mean it doesnt work? Why
Inguc_is
in
My Ovacome
10 months ago
Clinical Trial with Abemaciclib and Olaparib
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
TealBlooms
in
My Ovacome
11 months ago
tumor markers with a fracture
Has anyone’s Tumor markers gone up with a fracture? Today was her third Doxil treatment and the markers went up 30 points since she fractured her vertebrae on the 8th. Any experience ? Thank you guys!
Has anyone’s Tumor markers gone up with a fracture? Today was her third Doxil treatment and the markers went up 30 points since she fractured her vertebrae on the 8th. Any experience ? Thank you guys!
Maraki
in
SHARE Metastatic Breast Cancer
11 months ago
can they leave her?
Tomorrow will be consilium of doctore who will think what to do with my mom as she is with tube in nose and only drink and all what she drink come out to pocket. cT scsn show progress after 1 doxil, and progress in part where she has problem. Doctors need to think about surgery but who knows will they
Tomorrow will be consilium of doctore who will think what to do with my mom as she is with tube in nose and only drink and all what she drink come out to pocket. cT scsn show progress after 1 doxil, and progress in part where she has problem. Doctors need to think about surgery but who knows will they
Inguc_is
in
My Ovacome
11 months ago
update about mom
Update about my mom.. CRP is up from 128 to 250 she has temperature 39.7 paracetamol help her , but question is that from ascites? They said tomorrow maybe they can take it out , i am so affraid of ascites she never had it before 😞 but looks like all what is going on with her digestive system is from
Update about my mom.. CRP is up from 128 to 250 she has temperature 39.7 paracetamol help her , but question is that from ascites? They said tomorrow maybe they can take it out , i am so affraid of ascites she never had it before 😞 but looks like all what is going on with her digestive system is from
Inguc_is
in
My Ovacome
1 year ago
bad news :(
my mom is in hospital now as she had very painfull burp and vomit all out. They found ascite :( i dont know how much as her weight is the same and abdomen not so big, she has hernia and when she stand up it became full of water and probably from that is this reflux :( i am so sad as in this all years
my mom is in hospital now as she had very painfull burp and vomit all out. They found ascite :( i dont know how much as her weight is the same and abdomen not so big, she has hernia and when she stand up it became full of water and probably from that is this reflux :( i am so sad as in this all years
Inguc_is
in
My Ovacome
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
How long was remission with caelyx?
I was wondering among those who received carbo/caelyx/doxil for first recurrence, if you achieved remission or stable disease, how long did it last?
I was wondering among those who received carbo/caelyx/doxil for first recurrence, if you achieved remission or stable disease, how long did it last?
Frags4
in
My Ovacome
1 year ago
can someone help with some experiences with Doxil?
Hello everyone, My mom has been in Xeloda for a year and it just stopped working.ok she had her first round of doxil this morning and will be on it until it stops working I guess… anyone have any experience with doxil? I know I shouldn’t but reading all the side effects has really put me down in
Hello everyone, My mom has been in Xeloda for a year and it just stopped working.ok she had her first round of doxil this morning and will be on it until it stops working I guess… anyone have any experience with doxil? I know I shouldn’t but reading all the side effects has really put me down in
Maraki
in
SHARE Metastatic Breast Cancer
1 year ago
Small Increase NODE
Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She has since had Taxol/Carbo and major debulking surgery. She was NED for 2 years. She then had a small increase in her external iliac node and she received 6 rounds of doxil/carbo. At this point her CA125 was 63. She was NED
Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She has since had Taxol/Carbo and major debulking surgery. She was NED for 2 years. She then had a small increase in her external iliac node and she received 6 rounds of doxil/carbo. At this point her CA125 was 63. She was NED
Lind58
in
My Ovacome
1 year ago
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