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Thoracic Endo - advice needed
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Pink32
in
Endometriosis UK
5 months ago
PSP/CBD Symposium - Saturday, June 29, 10am-3pm Pacific (US time)
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
rriddle
in
PSP Association
4 hours ago
very hard time today…need support
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
Daisy425
in
Anxiety and Depression Support
1 day ago
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Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Gardenview10
in
British Heart Foundation
2 days ago
Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Sophieeeee
in
LUPUS UK
2 days ago
cruise next week
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
Daisy425
in
Anxiety and Depression Support
4 days ago
Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
DanaMSAA
Partner
in
My MSAA Community
10 days ago
My DIY red light therapy / photobiomodulation helmet build. If you have built one and would like to share pictures please do.
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
Glenfarclas
in
Cure Parkinson's
11 days ago
Has anyone done the proton therapy?
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
PARKER3237
in
Advanced Prostate Cancer
11 days ago
update on oxygen therapy
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
Regenallotment
in
Thyroid UK
14 days ago
EIS-12656, a first-in-class allosteric inhibitor of ALC1: will soon start a phase 1 trial
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
Maxone73
in
Advanced Prostate Cancer
14 days ago
surely no more - - -
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
Dudders123
in
IBS Network
14 days ago
Pneumocystis pneumonia - PCP
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
TEDDYM
in
LUPUS UK
17 days ago
Working on overcoming FND
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
cgarff
in
Functional Neurological Disorder - FND Hope
18 days ago
Aspen Neuroscience to Present at International Society for Cell & Gene Therapy (ISCT) Annual Meeting
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
Farooqji
in
Cure Parkinson's
22 days ago
Just Tired
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Uptowngirl12121
in
CHADD's ADHD Parents Together
23 days ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
26 days ago
Moving forward
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I had a seizure but sometimes in my sleep. It was either when I was fully awake and alert and I could see my surroundings but then if I did have
mavem100
in
Functional Neurological Disorder - FND Hope
27 days ago
B.A.T and Provenge trial.
After 9mo the Arv-766 started to fail. I will be starting a combination therapy trial through Yale using B.A.T. And Provenge. This is the first time I’ve heard of such a combo. There are only 6 of us in this trial. Is there anyone else on this trial or have any experience with using both treatments
After 9mo the Arv-766 started to fail. I will be starting a combination therapy trial through Yale using B.A.T. And Provenge. This is the first time I’ve heard of such a combo. There are only 6 of us in this trial. Is there anyone else on this trial or have any experience with using both treatments
No_stone_unturned
in
Advanced Prostate Cancer
29 days ago
school anxiety
I’m in speech therapy grad school, something I’ve worked towards for a VERY long time. I made so many sacrifices to be here and I got a C in a clinical experience. In my program you have to get a B to pass and move forward. I have to redo this clinical experience and any time I have a meeting for it
I’m in speech therapy grad school, something I’ve worked towards for a VERY long time. I made so many sacrifices to be here and I got a C in a clinical experience. In my program you have to get a B to pass and move forward. I have to redo this clinical experience and any time I have a meeting for it
Pupsandpeonies
in
Anxiety and Depression Support
30 days ago
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