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Can PMR last for 5years+?
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Phoebe12345
in
PMRGCAuk
21 hours ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
12 days ago
Eye problems following catheter ablation
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
Karendeena
in
Atrial Fibrillation Support
13 days ago
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B12 Deficiency, recently diagnosed, seeking advice.
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Dfthbhjj
in
Pernicious Anaemia Society
24 days ago
Self-care while waiting for diagnosis
Hello everyone, I recently went to my family doctor about an achey burning in my hips, shoulders and neck that is much worse in the morning, ongoing for about a month now. Getting out of bed and up from chairs is suddenly very difficult (but gets easier by about supper time). My appetite is also down
Hello everyone, I recently went to my family doctor about an achey burning in my hips, shoulders and neck that is much worse in the morning, ongoing for about a month now. Getting out of bed and up from chairs is suddenly very difficult (but gets easier by about supper time). My appetite is also down
Bunchberry
in
PMRGCAuk
27 days ago
How overcome a high B12 test from when I must supplement to function?
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Pamelayne
in
Pernicious Anaemia Society
27 days ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
30 days ago
GP says results are fine
Fatigue, brainfog, muscle aches, joint pain, and other various symptoms. Below are my blood test results. The GP stated there is nothing of concern. He seemed more focused on mental health issues. Is there anything obvious below? Someone said to post here. Rheumatoid factor 8 Range: Below 12.5
Fatigue, brainfog, muscle aches, joint pain, and other various symptoms. Below are my blood test results. The GP stated there is nothing of concern. He seemed more focused on mental health issues. Is there anything obvious below? Someone said to post here. Rheumatoid factor 8 Range: Below 12.5
ArinEla
in
Thyroid UK
1 month ago
Low B12 and ferritin questions
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
bakedbean5007
in
Pernicious Anaemia Society
1 month ago
Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
1 month ago
High stomach pH
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
Chickens44
in
Pernicious Anaemia Society
1 month ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
2 months ago
Hi, I'm sure it's been answered before,but can't seem to locate...is it OK to test for I.Factor after loading doses please? If not why?
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Jo5454
in
Pernicious Anaemia Society
2 months ago
Blood test results abnormal. But doctor says normal! How?
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
DandyButch
in
Thyroid UK
2 months ago
hashimotos and b12
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
Rowing2
in
Pernicious Anaemia Society
2 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
2 months ago
Thoughts on blood results and next steps please
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Wispymisty
in
LUPUS UK
2 months ago
Intrinsic Factor blood test
How long does it take for NHS to run this test? I had the test done last Tuesday, but the results are still not showing on my records.
How long does it take for NHS to run this test? I had the test done last Tuesday, but the results are still not showing on my records.
Chickens44
in
Pernicious Anaemia Society
2 months ago
I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Wowo23
in
Pernicious Anaemia Society
2 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
2 months ago
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