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Argon plasma coagulation
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Radiation Proctitis looking for advise please.
I am going to have
Argon
Plasma
coagulation
(APC) with application of Purastat . I have been told I may have to have it a few times. I wondered if anybody has any information/experience of this? I also have frequent bowel movements that really affect my quality of life.
I am going to have
Argon
Plasma
coagulation
(APC) with application of Purastat . I have been told I may have to have it a few times. I wondered if anybody has any information/experience of this? I also have frequent bowel movements that really affect my quality of life.
Bettys-rose
in
Pelvic Radiation Disease Association
4 months ago
Pain after intercourse
After receiving a couple of units of blood, I underwent
argon
plasma
coagulation
. The bleeding has decreased and I am optimistic about that condition. There is another problem that I hope someone can suggest a cause, and maybe a treatment.
After receiving a couple of units of blood, I underwent
argon
plasma
coagulation
. The bleeding has decreased and I am optimistic about that condition. There is another problem that I hope someone can suggest a cause, and maybe a treatment.
paladin7
in
Prostate Cancer Network
1 year ago
Leg Strength Change
Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a diet change. The only benefit was that it has made getting up from a seated position extremely easy. Has anyone else experienced this? No other
Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a diet change. The only benefit was that it has made getting up from a seated position extremely easy. Has anyone else experienced this? No other
Ostap
in
Ataxia UK
3 months ago
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anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
3 months ago
Therapeutic Plasma Exchange
That's right, I'd never heard of it either. I posted a while back about blood transfusion therapy: [i]https://healthunlocked.com/amneasier/posts/147591737/anti-ageing-turn-back-the-clock-on-disease-and-all-that.[/i] An excellent post. So good, it garnered no interest at all on here. I still can't
That's right, I'd never heard of it either. I posted a while back about blood transfusion therapy: [i]https://healthunlocked.com/amneasier/posts/147591737/anti-ageing-turn-back-the-clock-on-disease-and-all-that.[/i] An excellent post. So good, it garnered no interest at all on here. I still can't
monkeybus
in
AMN EASIER
8 months ago
Functional autoantibodies, a new paradigm in autoimmunity?
I came across a reference to "functional autoantibodies" in autoimmune diseases, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract. Title : As per this post Link : https://www.sciencedirect.com
I came across a reference to "functional autoantibodies" in autoimmune diseases, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract. Title : As per this post Link : https://www.sciencedirect.com
humanbean
in
Thyroid UK
1 year ago
Radiation proctitis....treatment
He proposed
Plasma
Coagulation
...100 % confidence and good quality of life...He is top in APC... Should I take the path of APC....??? Any experience of friends .....?? Thanks
He proposed
Plasma
Coagulation
...100 % confidence and good quality of life...He is top in APC... Should I take the path of APC....??? Any experience of friends .....?? Thanks
Karmaji
in
Advanced Prostate Cancer
2 years ago
Brain shrinking
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
Kw55
in
Encephalitis Society
1 year ago
Encephalitis of unknown origin and currently no diagnosis!
Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas
Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas
Hidden
in
Encephalitis Society
1 year ago
Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
1 year ago
A comeback is possible
Happy New Year all! Firstly, I want to say sorry in advance to anyone reading this who is having a very difficult encephalitis or post encephalitis time but my thinking is, certainly for any families going through the long horrible journey of encephalitis now, that this might help you look to a potential
Happy New Year all! Firstly, I want to say sorry in advance to anyone reading this who is having a very difficult encephalitis or post encephalitis time but my thinking is, certainly for any families going through the long horrible journey of encephalitis now, that this might help you look to a potential
The_Bass
in
Encephalitis Society
1 year ago
ANCA MPO and Systemic sclerosis positive - Suddenly ESR 93
Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs: ANCA and Scl-70 positive; IgM <25 ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "
Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs: ANCA and Scl-70 positive; IgM <25 ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "
irishponies
in
Vasculitis UK
1 year ago
prednisalone dose
I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The
I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The
Diyfan
in
PMRGCAuk
2 years ago
Is your Parkinson's diagnosis really idiopathic? Or is there an underlying cancer/autoimmune disorder?
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
SilentEchoes
in
Cure Parkinson's
2 years ago
Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
[u]
Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis
[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran
[u]
Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis
[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran
Jen2803
in
Myasthenia Gravis Association
2 years ago
People of HU - Neuromyelitis Optica: Ashlee's story
Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through
Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Plasmapheresis / Therapeutic Plasma Exchange, TPE
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
Purple-Bike
in
Advanced Prostate Cancer
2 years ago
Two PerPLEXing Cases of Hashimoto’s Encephalopathy Unresponsive to Steroid and Intravenous Immunoglobulin Therapy
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
helvella
Thyroid UK
in
Thyroid UK
2 years ago
A very happy (and long-overdue) update
I thought that today, being World Encephalitis Day, I should finally write the post that I have been meaning to write for months. I can’t believe it’s been six months since my last update, and my oh my how different things are now! A brief recap: my husband was diagnosed with HSE In June 2021. He was
I thought that today, being World Encephalitis Day, I should finally write the post that I have been meaning to write for months. I can’t believe it’s been six months since my last update, and my oh my how different things are now! A brief recap: my husband was diagnosed with HSE In June 2021. He was
every_cloud
in
Encephalitis Society
2 years ago
Plasmapheresis treatments
Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results? Will be discussing options with docs Monday after they discuss…IVIG or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying
Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results? Will be discussing options with docs Monday after they discuss…IVIG or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying
Byourownadvocate
in
Hughes Syndrome APS Forum
2 years ago
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