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Constant uti's
I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes
artificial
saliva
ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.
I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes
artificial
saliva
ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.
Lucylou72
in
LUPUS UK
6 months ago
Does anyone take this supplement?
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
Bassetmommer
in
Kidney Dialysis
7 days ago
Could MCAS a possibility?
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Owl84
in
The UK Mastocytosis Support Group
11 days ago
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Important from The PBC Foundation....
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
DonnaBoll
Administrator
in
PBC Foundation
14 days ago
Peritoneal dialysis catheter block
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Marbella17
in
Kidney Disease
14 days ago
do I go ahead with a laparoscopy?
please help me - you’re the only community that who actually helps and understands! I have had 3 miscarriages(natural) - all early. Since my first miscarriage 14 months ago I have been in constant pain. 2/10 half the month and maybe 6-7 for maybe 1 week. I have heavy periods and recently clotting, especially
please help me - you’re the only community that who actually helps and understands! I have had 3 miscarriages(natural) - all early. Since my first miscarriage 14 months ago I have been in constant pain. 2/10 half the month and maybe 6-7 for maybe 1 week. I have heavy periods and recently clotting, especially
Maybeendo
in
Endometriosis UK
18 days ago
WHAT IS THE BEST DIET FOR BRONCHIECTASIS
I HAVE TONS of mucas all the time tho use saline neb and oscillating vest twice a day. adjustable bed but mucas still drains what is the best diet for this illness\?
I HAVE TONS of mucas all the time tho use saline neb and oscillating vest twice a day. adjustable bed but mucas still drains what is the best diet for this illness\?
Lapis5
in
Lung Conditions Community Forum
18 days ago
Wednesday's Word
[u][i]
Second line therapy
[/i][/u] [u][i][/i][/u]
This a term used In PBC a patient does not respond to Urso - usually within a year's time from the start of dosing. A different drug of choice is needed.
The only approved second line treatment is the use of Ovaliva (obeticholic acid
[u][i]
Second line therapy
[/i][/u] [u][i][/i][/u]
This a term used In PBC a patient does not respond to Urso - usually within a year's time from the start of dosing. A different drug of choice is needed.
The only approved second line treatment is the use of Ovaliva (obeticholic acid
DonnaBoll
Administrator
in
PBC Foundation
23 days ago
Ocaliva and side effects
Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to occasionally have in the liver area is gone. Cons. The itchy skin drives me insane, can't sleep, I'm always tired and to add insult to injury some
Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to occasionally have in the liver area is gone. Cons. The itchy skin drives me insane, can't sleep, I'm always tired and to add insult to injury some
Beatris03
in
PBC Foundation
24 days ago
First Time Nebuliser Use
Hi everyone, my Respiratory Consultant has suggested I try nebulising with saline to help clear my chest and hopefully reduce the problem of mucus plugging which then impacts my breathing obviously. I’ve bought the nebuliser and have the saline on prescription. My query is I’ve read when using for the
Hi everyone, my Respiratory Consultant has suggested I try nebulising with saline to help clear my chest and hopefully reduce the problem of mucus plugging which then impacts my breathing obviously. I’ve bought the nebuliser and have the saline on prescription. My query is I’ve read when using for the
LizPat30
in
Lung Conditions Community Forum
28 days ago
Update on tests etc
hi all. Just an update after my recent CT scan, and the dreaded bronchoscopy on Tuesday this week. Obviously haven't had full results of latest CT scan, apart from a short note from my consultant to say there was a 6.5 millimetre nodule in ththe Apex of my right lung. They will monitor it, if it stays
hi all. Just an update after my recent CT scan, and the dreaded bronchoscopy on Tuesday this week. Obviously haven't had full results of latest CT scan, apart from a short note from my consultant to say there was a 6.5 millimetre nodule in ththe Apex of my right lung. They will monitor it, if it stays
Tiggertheterrier
in
Lung Conditions Community Forum
29 days ago
Salt water washing post adult Circumcision week 6
It has now almost been 6 weeks post my circumcision surgery and the dry patches of skin still linger on my glans and frenulum. I have read on this forum elsewhere that salt water washes help in clearing these dry patches. I was wondering if 1) I should dip it in saline solution before or after taking
It has now almost been 6 weeks post my circumcision surgery and the dry patches of skin still linger on my glans and frenulum. I have read on this forum elsewhere that salt water washes help in clearing these dry patches. I was wondering if 1) I should dip it in saline solution before or after taking
Bisyar
in
Men's Health Forum (Penis Health)
29 days ago
can't get a mucas culture from lungs.
I have had Bronchiectasis for five years and many lung infections.. Pseudomonas etc.and mos of Iv antibiotics. Have never had a problem getting a culure till now.. four times the lab said it was contaminated by oral something or other. So did not run it for respiratory disease. I even went to
I have had Bronchiectasis for five years and many lung infections.. Pseudomonas etc.and mos of Iv antibiotics. Have never had a problem getting a culure till now.. four times the lab said it was contaminated by oral something or other. So did not run it for respiratory disease. I even went to
Lapis5
in
Lung Conditions Community Forum
1 month ago
is my pain Endo + did it cause my miscarriages?
finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From ovulation from the 1st pregnancy and ever since I now have lower abdominal pain - maybe 3 out of 4 weeks of the month. I never had this pain before
finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From ovulation from the 1st pregnancy and ever since I now have lower abdominal pain - maybe 3 out of 4 weeks of the month. I never had this pain before
Maybeendo
in
Endometriosis UK
2 months ago
Ocaliva
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Lena2011
in
PBC Foundation
2 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
another pharma update
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Question on steam/vapour breathing
I have a question for those who use steam/vapour breathing to ease off their symptoms. Do you use distilled water, reagular tap water, or a saline solution? My specialist seemed puzzled when I asked her this, and said that, in principle, a saline solution is optimal. I currently use distilled water.
I have a question for those who use steam/vapour breathing to ease off their symptoms. Do you use distilled water, reagular tap water, or a saline solution? My specialist seemed puzzled when I asked her this, and said that, in principle, a saline solution is optimal. I currently use distilled water.
runcyclexcski
in
Asthma Community Forum
2 months ago
Seladelpar update
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Asthma
I'm on a high level of medication for my asthma I've been with lung specialist for 5 years, I was diagnosed with asthma in the 90s but it was mild enough for me to continue work, however as the years increased my asthma was starting to become a problem, well anyway now my asthma has become a real problem
I'm on a high level of medication for my asthma I've been with lung specialist for 5 years, I was diagnosed with asthma in the 90s but it was mild enough for me to continue work, however as the years increased my asthma was starting to become a problem, well anyway now my asthma has become a real problem
Happy103
in
Lung Conditions Community Forum
2 months ago
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