Ataxia UK | HealthUnlocked

Over the last few months I’ve started getting shooting/sharp pin prick like pains in my toes, fingers and eyes plus burning sessions in my thumbs. Only happen...

Any suggestions to relax leg stiffness? It’s bad enough having leg weakness and hideous balance issues, but having legs like 2 concrete posts makes things so...

Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I...

Falling is really scary. I'm constantly bruised from losing my balance but every so often I have a pretty big fall. Like today, I was trying to stand up from...

I first saw the professor at Sheffield when I was first diagnosed in 2021 then the following two years I saw his assistants but this year I haven't been sent a...

I am struggling with balance anybody know any exercises and balance ball any good with help

Got another question to ask all my ataxia friend’s are normally quick to answer so here goes. I have SCA2 my mum and her 2 sisters are ataxia free so I think...

I am a physician in the US. I am looking for interventions that can help my patients. Has anyone had any experience - good or bad - with weighted garments...

Hi, I have always taken high dose supplements, does it help the ataxia? I don't know!Looked at Patrick Holfords supplements and "Brain Food" sounded...

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the usual symptoms of balance loss, problems walking, etc. What I don't read much...

Ever since I was a small boy, my hands have shaken, in fact my brother tells me I was born shaking (I don’t know if he was kidding) Any way as I said, shaken...

I have booked special assistance from and to stansted airport on return flights to bologna on the 23rd and 30th Jun. I can walk a little if someone accompanies...

I have finally found the correct description for what it is like for me with SCA3. Can you imagine walking in a stream that has river pebbles so that your...

Not having enough visual information, such as when you are in darkness, open spaces or travelling in a lift, can affect balance. Your eyes get their...

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. We have been told it’s very rare but this could be due to only recently finding...

Is there anyone who experiences great weight loss after switching to external nutrition via PEG? My brother who has had SCA1 ataxia since 2010, lost 10 kg (44...

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcast and then did some digging. I received an email from my physical therapist...

🙂People in the UK Improving diagnosis and management of Gluten ataxia Ataxia UK, Coeliac UK, and the Sheffield Hospitals Charity have awarded funding to...

A new study on speech disorders in ataxias is recruiting participants Do you have a diagnosis of ataxia, and experience speech disorders? If so, you could...