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Hidradenitis Suppurativa Support | HealthUnlocked
Hidradenitis Suppurativa Support
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107 posts
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Finally diagnosed!
It’s only taken 7 years 🙄
It’s only taken 7 years 🙄
Ms_J
•
8 months ago
2 Replies
Looking for consultant recommendations
So it looks like all my daughters have inherited HS from me. :( My youngest is only 16 and I'd like to get her to see the best UK consultant I can in the hope...
So it looks like all my daughters have inherited HS from me. :( My youngest is ...
Lettie_WP
•
1 year ago
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Flares, sickness and bursting
I’m getting mini flares at the moment which are lasting up to a day or a few hours… but when I know a burst is imminent, I always feel sick and tired. This...
I’m getting mini flares at the moment which are lasting up to a day or a few hou...
Nicolaclare01
•
1 year ago
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I've waited 68 years to get a disease I never heard of!
Hi I'm new to this site but I've been a member of HealthUnlocked --COPD and Asthma for a few years. Over the years and rather mild and sporadically, I have had...
Hi I'm new to this site but I've been a member of HealthUnlocked --COPD and Asth...
patmc1
•
4 years ago
7 Replies
Hs I hate you but you won't win
Hello Just found this community in regards to HS and wanted to give you my insights. I have suffered for HS for 15 plus years. Long time I know. I have...
Hello Just found this community in regards to HS and wanted to give you my insig...
Mtechx
•
4 years ago
2 Replies
HS and Humira questions
I've been taking Humira for 6 months to control my HS. I haven't really seen any side effects. Lately, though, my knuckles and my hands are sore. They feel...
I've been taking Humira for 6 months to control my HS. I haven't really seen any...
imaspud67
•
4 years ago
2 Replies
1 whole year without a flare up and then boom. One happens.
I don’t know what to do anymore, I’m having a flare after a year of not having one. I’ve given up smoking, lost weight, so I’m now putting it down to hormones....
I don’t know what to do anymore, I’m having a flare after a year of not having o...
Nicolaclare01
•
5 years ago
2 Replies
Going to discuss with Derm to try Humira
I am 39 years old and was officially diagnosed with HS 5 years ago, however, I’ve been dealing with this disease since puberty. Recently, I’ve developed...
I am 39 years old and was officially diagnosed with HS 5 years ago, however, I’v...
inquiring_mind
•
5 years ago
1 Reply
Update
Hi all I thought I would update you on my progress since I last posted about 7 months ago. At that time I had lost access to my trusted Skinsan because my gp...
Hi all I thought I would update you on my progress since I last posted about 7 m...
choirgirl57
•
5 years ago
5 Replies
Dealing with Hs and loosing weight
So recently I was diagnosed with Hs but unfortunately it’s been going on for a good few months now just under a year. I have been finding my self very...
So recently I was diagnosed with Hs but unfortunately it’s been going on for a g...
Lukaszmiszkiel
•
5 years ago
4 Replies
Finding Others
Is anyone out there experiencing a weight gain while taking Humira? I am certainly not a gym rat, but I decided within the last year to finally doing smething...
Is anyone out there experiencing a weight gain while taking Humira? I am certai...
mommy483
•
5 years ago
1 Reply
HS and Me
It has been less than a year since I was diagnosed. Before that I was told a lot of different things. That it was my skin, that it was acne and the most...
It has been less than a year since I was diagnosed. Before that I was told a lo...
mommy483
•
5 years ago
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A little about me
Hi I'm 33 years old I've dealt with HS since I was 7 years old my affected areas are my armpits under my breast my groin area and my inner thighs I am...
Hi I'm 33 years old I've dealt with HS since I was 7 years old my affected areas...
Rshahrok
•
5 years ago
2 Replies
HS sufferer
Hi, I was officially diagnosed with HS in my groin area of August last year, whilst pregnant with my son. Since giving birth I have now been put on a...
Hi, I was officially diagnosed with HS in my groin area of August last year, wh...
Leaandfrank19
•
5 years ago
6 Replies
12 years now.
I’ve been suffering with HS for a long time. Only started getting worse though, past 5 years. My body feels ruined. I diagnosed myself pretty much, because my...
I’ve been suffering with HS for a long time. Only started getting worse though, ...
OutgoingIntrovert
•
5 years ago
7 Replies
New member seeking advice please
Help please, I have been using prescription body wash called Skinsan which contains Triclosan but my GP says it’s no longer available and has advised buying...
Help please, I have been using prescription body wash called Skinsan which conta...
choirgirl57
•
5 years ago
4 Replies
Thank you
Hello I am a Rory I have had HS for 8 years. I have been using this page for about 1 year never posted though I would just like to say thank you to all the...
Hello I am a Rory I have had HS for 8 years. I have been using this page for abo...
Ukrory95
•
5 years ago
1 Reply
HS- lumps in my groin
I have been suffering with lumps in my groin area for a few years now, doctors first thought just boils or in growing hairs, I had my first lump removed at the...
I have been suffering with lumps in my groin area for a few years now, doctors f...
hels41
•
6 years ago
1 Reply
Monthly hidradenitis infection fever
I’ve be suffering for many years with it in my armpits( painful, not like to look at) . Then about a year ago it started in the groin area . I’ve tried many...
I’ve be suffering for many years with it in my armpits( painful, not like to loo...
hayleyt14
•
6 years ago
6 Replies
Advice please!
I’m currently on Rifampin and Clindamycin, but I have given up drinking until I’ve finished these antibiotics, but I’ve had all the tests and everything for...
I’m currently on Rifampin and Clindamycin, but I have given up drinking until I’...
Nicolaclare01
•
6 years ago
2 Replies
Hs and Botox
Hey I have heard that Botox can help with hs as an alternative to surgery for about 18- 24 months. Does anyone know anything about this??
Hey I have heard that Botox can help with hs as an alternative to surgery for ab...
bessy_10
•
6 years ago
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Hi everyone
Hi I’ve had HS for about 5 years now I’ve got it under my arms and I know shaving is not an option and I don’t want to try self waxing as I already did that...
Hi I’ve had HS for about 5 years now I’ve got it under my arms and I know shavin...
bessy_10
•
6 years ago
8 Replies
HS
I was diagnosed 10 years ago with hs. It started around the age of 25 I am aged 46. My problem is not life threatening but when they flare up the little sores...
I was diagnosed 10 years ago with hs. It started around the age of 25 I am aged ...
Witchybrew
•
6 years ago
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Emuaid first aid ointment
Okay so like when I first was typing in treatments for HS Emuaid popped up and it sounds like an effective product from reading stuff on the website but wanted...
Okay so like when I first was typing in treatments for HS Emuaid popped up and i...
Sophhhh
•
6 years ago
1 Reply
So far no more painful outbreaks!!
Hi, my name is Susan and I was finally diagnosed with HS last year after going to see my dermatologist for a mole check! I had been having super bad out breaks...
Hi, my name is Susan and I was finally diagnosed with HS last year after going t...
Suzoo
•
6 years ago
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Hidradentitis suppurative specialist?
Dear community, I am looking for an HS specialist. My son may have it .....his fingers are badly affected. The GP has no interest in helping. Can anyone...
Dear community, I am looking for an HS specialist. My son may have it .....his f...
AliceWolf
•
6 years ago
3 Replies
Long term medication?
Hi, I recently got a pretty dismissive diagnosis in December of Hidradenitis Suppurativa. I have suffered with reoccurring cysts for two years and through...
Hi, I recently got a pretty dismissive diagnosis in December of Hidradenitis Sup...
emma_elizabeth_1992
•
6 years ago
19 Replies
Information please
Is this HS related to people with diabetes? I’m a female who has not been officially diagnosed as an HS suffer yet by my GP . I have diabetes’s and I nave...
Is this HS related to people with diabetes? I’m a female who has not been offici...
Irenejudge
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6 years ago
4 Replies
The Lack of knowledge is scary.
I’m rather concerned by the lack of knowledge being passed onto patients of HS, the cause of HS is known so why are people still left asking the Internet or...
I’m rather concerned by the lack of knowledge being passed onto patients of HS, ...
LadyJoro
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6 years ago
7 Replies
What is HS linked to?
I suffer from HS and I’m starting to think that it’s either alcohol related or hormonal. Please can anyone confirm to me what supposedly triggers HS flare ups?...
I suffer from HS and I’m starting to think that it’s either alcohol related or h...
Nicolaclare01
•
6 years ago
8 Replies
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