Hughes Syndrome APS Forum | HealthUnlocked

Hello there, Just looking to connect with all the very few triple positives/ High titres APS fellows out there. I have managed my condition with Warfarin so...

my blood work indicated aps. i had a stroke and tia. i'm on warfarin. neither the hemotologist nor the neurologist seem to want to say for certain that i have...

I am having trouble getting help with the next phase of my disease. I have been in a 5 month funk with micro clots which has caused fatigue and all the...

Hi im new here and wondered if anyone suffered facial droop one side. mine was right side face and mouth along with muscle weakness, worst on right side but...

I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I...

Hi folks, I read that a side effect of APS can be impact on memory. It’s hard to put a date on it, I was finally diagnosed Triple P a year ago after strokes in...

Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from...

Don't worry about reading if too long and boring.............. After a year that was pretty much boring (felt well, no changes to meds etc.) along came...

https://www.the-rheumatologist.org/article/what-rheumatologists-need-to-know-about-antiphospholipid-syndrome/

My rheumatologist might start me on this next week. Have been reading up on it, and it's a bit scary Anyone here taking it?

Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on...

HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment...

Is anyone on Ryeqo? I have fibroids and endo and someone suggested this, but reading the product info I'm not too sure. I have APS and have previously...

In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding...