Hi all
So lovely to be part of this community I have had lots of very good advice over the years !
was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last few years and notice they ate getting even more painful !
any thoughts please
Have you had medical advice? I assume you are getting medication. When you say the attacks are getting more painful that seems worrying.
I am only going by my experience of many many utis which sometimes seemed more like interstitial cystitis and kidney infections in the dead of night and which eventually were cured after advice from a specialist (vaginal cream which acts as a barrier to the entire genital/urinary area.)
Hi, I am interested in your reply about the cream to act as a barrier. I am living on low dose antibiotic for recurrent UCI’s, which are not beneficial for my IBS. Can you tell me the name of the cream you use and whether it is available over the counter please. Thank you.
Hi, I am in New Zealand. The cream is Ovestin...ingredients are oestriol, chlorhexidine hydrochloride. Prescription only. I believe it restores the hormonal balance as it is useful in the early stages of thrush as well. I used it as a preventative every 2-4 days.
Also, later in life when I had uti symptoms but urine tests did not show infection another specialist recommended D-mannose which worked. zoompharmacy.co.nz/shop/uro...
Hi there. Yes I have had both IC and IBS diagnosed. According to one research project those with IC are up to 100 times more likely to have some form of inflammatory bowel issue. I would always get a urine check if you have any new kidney pain symptoms. Whilst IC can give you neurological kidney pain you can still get an infection. I found the book Along the Healing Path by Catherine Simone an excellent source of support for IC and how to manage symptoms. It raises the issue of managing it with IBS. I used some of her tips with positive results.
thanks for your reply , do you have pain all over your abdomen with IC ?
I have had IC for many years, I had a Medtronic device for the IC from my urologist that has been a miracle for . I would be in a lot of pain if it wasn’t for this device I’ve had ICE for like 20 years probably longer. I would ask my urologist about this device .I’ve developed IBS about five years ago now I’m dealing with that
thanks so much for your reply
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