PBC Foundation | HealthUnlocked

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m fairly sure uses Gadolinium as the contrast medium, at an NHS...

Do you and your husband ( or significant other) really ever talk about your diagnosis? I know for me, my husband rarely spoke about it....

Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial...

Who is dealing with brain fog? What are you experiencing? How are you dealing with it?

i am at wit’s end with this pain, that appears much worse at night~. Is this a symptom? I am in agony

Hello Everyone, I was diagnosed in 2018 and have had no issues, as bloodwork abnormalities led to my diagnosis, rather than symptoms. Fortunately for me,...

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in that it’s led me down a healthier path with better eating choices. I now enjoy...

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

Urso responder........ Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper...

I'm going out of town for just a couple days Monday afternoon through Wednesday. I'll be in the Branson, MO and Dogwood Canyon area if anyone lives down that...

What would the title of your autobiography be?

hi I’am just wondering if anyone has retired early due to the extreme fatigue and brain fog caused by pbc. I am a practice nurse and I’am 63 I feel that as...

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to...

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' information from one of the Q&A sessions held this week with Dr. Gish. In the search bar...

Hi there I was wondering if anyone has this in whitehaven workington Area

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

What - if anything - has been positive about being diagnosed with PBC?

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it...

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

Why do you think so many of us still have a difficult time making time for ourselves? Why is it so hard to just do something that takes...

What did you want to be when you 'grew up'? Did that dream come true for you?

I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands? These seem to be worse at night or after relaxing on a...

I have to apologize to the group for being so lax about posting some key points from Dr. Jones's book The Definitive Guide for the Patient With Primary...

If you could only listen to one song for the rest of your life, what would it be?

Anyone have a bucket list? What's at the top of it?

Can lichen planus affect your skin ? I do not have anything orally, but this sure look suspicious.

Arrived home last afternoon around 3. Laundry and unpacking all done... felt good to be in my own bed though. Had a great little trip to Ozark area of...

Who or what helped you the most getting over the initial shock of your diagnosis?

What have you done to take care of you recently? We all deserve - and need - to take time to just do what makes us happy. Regroup, recharge...

A recent ultrasound revealed possible gallstone blocking a bile duct. An MRCP was recommended and carried out a couple of weeks ago although more like an MRI...