pip updates: Hi All, Looking to see... - Fibromyalgia Acti...

Fibromyalgia Action UK

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pip updates

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10 Replies

Hi All,

Looking to see if anyone has done this before

I got rewarded the high rate of pip on both components

I’m in the stages of requesting my ill health retirement and I seen on here that people that had been through the illhealth some had said to request the report from pip assessment if they get pip and send that off as evidence to my I’ll health pension scheme

I did this and got my report

On looking on my pip assessment report it said to be reviewed in 3 years

The reason being although my physical elements they don’t think will improve they felt my mental health would so there for a review in 3 years for my pip

I’ve just been diagnosed with ADHD which was emotional because now I know why I have struggled all my life so much

Do you think I should send this new information to pip now I have had a diagnosis

It’s only with the assessor saying on my report to be reviewed in 3 years because she thought my mental health could improve

I’d be greatful to hear if anyone else as done this my pip claim is up 2026

I’m 55 and thinking with this new diagnosis would I have to get reveiwed every 3 years

When it’s clearly stated on the assessment

Physically she can’t see my chronic pain getting any better

Mentally she could improve there for assess

In 3 years time

sorry hope this makes sense what I’ve wrote x

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10 Replies
Dizzytwo profile image
DizzytwoModerator

Hi there, my personal opinion would be to wait and then add it to the review.l when it's due. You are already on high award for both so your not going to benefit further money wise.

But by adding it now you may have to go through the whole process again. And to be honest it may not make any difference time wise.

So I would keep it as back up for when I got reassessed. But that's just me .

Momo

DodgeDhanda profile image
DodgeDhanda

Hi Ten.

It's a new diagnosis & if I'm not mistaken the DWP say that any changes & U should make the DWP aware.

If Ur not sure check up on the government website & then read up on if U need to tell them as it will affect any money that could be on top of what ur already getting.

Also with an accurate diagnosis of adhd, it could mean that they move U to the protected group & be it 3 yrs or 5 yrs U rightly stated ur health situation isn't likely to change.

In short Ten have a look on the government website & everything that's on there is the actual truth & safest site to see what U need to do.

DodgeDhanda profile image
DodgeDhanda in reply to DodgeDhanda

Sorry I forgot to include website address.

gov.uk

bertie1606 profile image
bertie1606 in reply to DodgeDhanda

There is no protected group with PIP, and the op is already on the highest rates for PIP

Dinkie profile image
Dinkie

Has your condition changed or is it that a label has been attached to the symptoms you had when you first had your PIP assessment. PIP is, as you know, is granted or not on how you are affected not on the actual name of the illness. If your symptoms are exactly the same then personally I would probably wait for the review paperwork to arrive, which will be next year as they seem to send them out up to 12 months before the review date.

Dizzytwo profile image
DizzytwoModerator in reply to Dinkie

I agree Dinkie 👍

Dinkie profile image
Dinkie in reply to Dizzytwo

I do so hate labels though! I get upset when I am defined by a label.

Gigiruth profile image
Gigiruth in reply to Dinkie

Good point,you have not had a change in how you are ,just a diagnosis of why. Therefore you would not have to notify until the review. If you feel worried about not notify ,give them a ring to confirm and ask the name of who gives you advice. Stress it is not a change in function.

Purplelife123 profile image
Purplelife123 in reply to Dinkie

I agree as well I have just gone through a review and was went to enhanced from standard. I was awarded standard mobility as well so I was diagnosed with anxiety and depression only a couple of weeks later. I sent these details in whitch triggered them to look at your claim again which I didn’t realise. They looked at my whole claim again and reduced me back to standard. They reduced me 2 points which left me with 11 … you need 12 for enhanced. I could kick myself I thought I was doing the right thing. I didn’t want my claim looked at again just telling them about something new. Wait for your review I wish I had.

bertie1606 profile image
bertie1606

I agree with Dinkie and Dizzytwo, I would wait until your review. I had a new diagnosis before my last review and included in my review forms, they had no problem with that. I was already on the higher rates so it wouldn't have changed anything if I had told them sooner. If you tell them now they could ask for a review now x

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