viviselphie16 hours ago

Steroids can cause joint pain which I find ironic.

I have autoimmune joint pain that has been better because of the anti recjections.

Darlenia in reply to viviselphie6 hours ago

My hubby has a transplant but hasn't had any joint pain or pain issues. On the other hand, I have osteoarthritis and, during a bad flare, was put on prednisone for a short time. My bones stopped hurting, my finicky stomach (IBS) straightened out, and my chronic sinusitis disappeared. I thought I'd died and gone to heaven. I, speaking only for myself, would love to be on a small dose of prednisone for life.

Reply (0)Report

allene73 hours ago

So sorry to hear about your joint pain and muscle aches. I would check with your doctor. I have aches and pains as well sometimes, but my cause is rheumatoid arthritis and some osteoarthritis as well. I'm not saying that's what you have because it could be so many things.

Absolutely check with your doctor maybe it's a medication or something along those lines.

Congratulations on your new kidney.

Best of luck to you.

Jayhawker8 minutes ago

I’m 19 months post transplant. I’ve experienced a lot of joint pain and achy muscles post transplant—none before transplant. It’s my shoulders and my right ankle. Frankly, my shoulder pain has been pretty intense and my range of motion is significantly reduced in both shoulders.

The transplant center says this isn’t related to the anti-rejection meds. However, I see several studies investigating this sort of pain and onset of arthritis post transplant so this has to be “a thing” or it wouldn’t be the focus of so much research. Plus joint and muscle pain are both listed as possible side effects of Tacrolymous which should be reported to your transplant center.

My tacrolymous levels have been pretty stable and in target range so the transplant center does not think my joint pain relates to that med… Regardless, this is new for me and it’s onset correlates strongly with the start of the anti rejection meds.

I’m working with a PT at this point to try to minimize the pain and increase range of motion. I’m also going to see a rheumatologist in September to see what she thinks about arthritis. At a minimum I’m hoping for some guidance regarding how to manage this pain.

Jayhawker