Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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does a dreadful cold affect GCA

I have dreadful cold ,sore throat congestion in my nose fatigue.i am going for bloods on Monday perhaps wait till I feel stronger.

I have dreadful cold ,sore throat congestion in my nose fatigue.i am going for b...

Bluemoon2023

•1 hour ago

1 Reply

strange visual issue

12 weeks PMR. Generally feeling good. Rapid response to Pred follows g low taper advice gradually reducing to 10mg. However, have had a general headache for...

12 weeks PMR. Generally feeling good. Rapid response to Pred follows g low tap...

Scaredofpred

•1 hour ago

6 Replies

PMR Newbie

I’m a PMR newbie that’s very relieved to be starting steroids today after blood test showed CRP levels 65 mg/l and painful knees, hips shoulder, muscular...

I’m a PMR newbie that’s very relieved to be starting steroids today after blood ...

Classicalgeeze

•10 hours ago

2 Replies

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PMR Newbie

I’m a PMR newbie that’s very relieved to be starting steroids today after blood test showed CRP levels 65 mg/l and painful knees, hips shoulder, muscular...

I’m a PMR newbie that’s very relieved to be starting steroids today after blood ...

Classicalgeeze

•10 hours ago

2 Replies

You were right, of course, Dorset Lady!

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my primary care doc (I think you there refer to this one as a GP) who immediately...

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my pri...

Paulagcl

•14 hours ago

10 Replies

Is musculosketetal condition associated with PMR

I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when...

I have not written on the form for a while but would like your thoughts on the f...

PatB1948

•17 hours ago

5 Replies

PMR symptoms and Steroid sensitivity and withdrawal

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery plan is not working. I had about 10 days at the beginning of my 15 mg start on...

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery...

Dresdenplate

•18 hours ago

14 Replies

Just reading this mornings posts - what is MXT ??

My diagnosis was in Oct 23. Am now on 2nd round of steroids. Currently at 10mg of pred with a 50% reduction of symptoms. I have spoken to my gp about going...

My diagnosis was in Oct 23. Am now on 2nd round of steroids. Currently at 10mg o...

RodRea

•19 hours ago

10 Replies

Can PMR last for 5years+?

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first...

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR...

Phoebe12345

•20 hours ago

8 Replies

Double vision and PMR?

I have in recent years become more and more bothered by double vision when I am tired/fatiged. Of course, it is worse during flare-up periods. Now it can be...

I have in recent years become more and more bothered by double vision when I am ...

krillemy

•23 hours ago

13 Replies

Hot flushes

Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes -...

Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic a...

NewPMR53

•1 day ago

6 Replies

Pred and AFib

I was wondering if there is any link between pred and/or PMR and AFib? I had a catheter ablation in April 23 and had no further episodes until a fairly severe...

I was wondering if there is any link between pred and/or PMR and AFib? I had a c...

GRB8

•1 day ago

3 Replies

worsening vision left eye

I posted earlier a few weeks ago about problems with my left eye, the vision getting worse. Far distance looked like my vision did before cataract...

I posted earlier a few weeks ago about problems with my left eye, the vision...

Mstiles

•1 day ago

1 Reply

Bloating and gas

I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My biggest problem with this whole prednisone/PMR journey right now is extreme gas...

I've currently tapered from 25 mg Pred down to 11 currently over 5 months. My b...

lsplumb

•1 day ago

8 Replies

Hearing loss and PMR ?

I had a hearing test yesterday and was very disappointed to find out my hearing has deteriorated quite a lot since my last test three years ago. I am now...

I had a hearing test yesterday and was very disappointed to find out my hearing...

simps999

•1 day ago

25 Replies

I think I have a problem again…

I am 68, have been suffering with PMR for approx 10 years. I have previously got down to zero pred but not for long as there was a family upset that left me...

I am 68, have been suffering with PMR for approx 10 years. I have previously go...

Crochetgirl65_

•2 days ago

9 Replies

Advice re calcium, K2 and vit D

Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get...

Blood tests show normal levels of calcium, should I now take extra given the pre...

Fatsiajaponica

•2 days ago

8 Replies

High blood pressure

As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for...

As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole...

AliDeJ

•2 days ago

7 Replies

Tocilizumab and raised blood pressure.

Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injections left in my fridge. I am down to 5mg pred. I have tapered very slowly by 0.5...

Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injection...

AliDeJ

•2 days ago

10 Replies

Rheumy happy with my decision to try a very slow taper!!😜👏🏼👏🏼👏🏼

Hi PMR pro and DL,and any others who might be slightly interested!🥱🥱🥱🥱🤣!Just had a long conversation with Dr Sykes and told him that I would if I possibly...

Hi PMR pro and DL,and any others who might be slightly interested!🥱🥱🥱🥱🤣!Jus...

Angelsmummy

•2 days ago

13 Replies

Medications and tiredness

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the symptoms to old injury. I allowed the flare up to get to the point where it...

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the ...

MarkC1971

•2 days ago

41 Replies

Pain increasing

I thought I was doing ok with 9 mg of pred since June 1. But it seems my hips and low back are hurting more lately. Walking is very painful and I’m slowing...

I thought I was doing ok with 9 mg of pred since June 1. But it seems my hips a...

Aqua47

•2 days ago

4 Replies

osteopenia

I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I guess it was inevitable. I am going gym regularly now and can manage an hour...

I’m currently on 2.5. First diagnosed 2018. My dexa scan shows osteopenia, I gue...

Alazarin

•2 days ago

8 Replies

Too little Pred?

hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active,...

hello all- new here and am still working to understand PMR. I have a ton of bloo...

Hwle

•2 days ago

21 Replies

Steroid injection into Kiloid Scars

I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturday) to review treatment of kiloid scars. I think one of the options suggested...

I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturd...

scrambledegg

•2 days ago

2 Replies

Managing my Return from the Flare

Hi All, Grateful for the help from y'all on here regarding my recent flare and for pointing the way to the protocol for managing it. I was on 7mg Pred when...

Hi All, Grateful for the help from y'all on here regarding my recent flare and ...

Lickle

•2 days ago

7 Replies

Starting the Joint Pain Programme today

Morning everyone, I might not have PMR any longer but have OA, etc so I applied for the Nuffield Joint Pain Programme and I start today. (it took 3 goes...

Morning everyone, I might not have PMR any longer but have OA, etc so I applied...

whitefishbay

•2 days ago

5 Replies

Using flexiseq - tips please

I have recently been discharged by my rheumy, despite my crippling knee pain which he thinks is OA. I am still on half mg pred, and take blood thinners so...

I have recently been discharged by my rheumy, despite my crippling knee pain whi...

Broseley

•2 days ago

7 Replies

Facial Numbness

Having an odd symptom and wondering if you kind folks have any insights. About a week ago, I noticed numbness around my eyebrows and forehead. It was so subtle...

Having an odd symptom and wondering if you kind folks have any insights. About a...

Lenore58

•2 days ago

11 Replies

How is PMR diagnosed?

At the end of January after starting on a weekly alendronate, I began having stiffness in legs and shoulder / arm pain. I couldn't get up from an arm chair...

At the end of January after starting on a weekly alendronate, I began having sti...

JubileePenny

•2 days ago

13 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

does a dreadful cold affect GCA

strange visual issue

PMR Newbie

PMR Newbie

You were right, of course, Dorset Lady!

Is musculosketetal condition associated with PMR

PMR symptoms and Steroid sensitivity and withdrawal

Just reading this mornings posts - what is MXT ??

Can PMR last for 5years+?

Double vision and PMR?

Hot flushes

Pred and AFib

worsening vision left eye

Bloating and gas

Hearing loss and PMR ?

I think I have a problem again…

Advice re calcium, K2 and vit D

High blood pressure

Tocilizumab and raised blood pressure.

Rheumy happy with my decision to try a very slow taper!!😜👏🏼👏🏼👏🏼

Medications and tiredness

Pain increasing

osteopenia

Too little Pred?

Steroid injection into Kiloid Scars

Managing my Return from the Flare

Starting the Joint Pain Programme today

Using flexiseq - tips please

Facial Numbness

How is PMR diagnosed?

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