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CLL Support

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when to treat?

diagnosed in 2014 platelets now 68 with no other symptoms other than high wbc . Feeling healthy. When should I take treatment? Doctors have provided further...

diagnosed in 2014 platelets now 68 with no other symptoms other than high wbc ....

Mijoj3112

•11 hours ago

3 Replies

abnormal colonoscopy

Hi, wondering has anyone had any CLL cells , particularly neutrophils, cause an ulcer in their colon!! I’m waiting for results, I’m just wondering if my CLL...

Hi, wondering has anyone had any CLL cells , particularly neutrophils, cause an ...

Gino23

•13 hours ago

2 Replies

STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)

Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete...

Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, ...

dwolden

•18 hours ago

12 Replies

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Pure red cell aplasia

Anybody experience with this seldom disease?

seoul1949

•18 hours ago

1 Reply

Gallbladder removal with low platelets

I am in remission with CLL and now after a visit to A&E because of agonising pain they discovered Gallstones and want to remove my Gallbladder asap. My last...

I am in remission with CLL and now after a visit to A&E because of agonising pa...

MalcT

•20 hours ago

10 Replies

Grandads boys

Hi I started a trial for CLL 3 months ago,I am on a trial & started taking zanubrutinib for 3 cycles,I have started to take Sonrotoclax from yesterday as well...

Hi I started a trial for CLL 3 months ago,I am on a trial & started taking zanu...

Grandadsboys

•1 day ago

3 Replies

Importance of CLL Specialist

This excellent study was just published. Why should you get a CLL specialist? My community oncologist gave me a fish and a flow test and told me that I...

This excellent study was just published. Why should you get a CLL specialist? My...

PennyLane2024

•1 day ago

7 Replies

Continued Journey

I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT....

I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I ha...

FiArt12X

•2 days ago

22 Replies

Complete Remission

My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states...

My Complete Blood Count (CBC) results state the normal range for Lymphocytes is ...

leftysfsl1945

•2 days ago

6 Replies

MRD - Flow test compared to clonoSEQ

I just got this result after a year of Acalabrutinib and Venetoclax on the Majic trial. I'm currently waiting for the clonoSEQ MRD6 results. Below...

I just got this result after a year of Acalabrutinib and Venetoclax on the Majic...

JDG45

•2 days ago

3 Replies

2nd gen BCL-2 inhibitor in trials and looking promising -- Sonrotoclax (BGB-11417)

https://www.beigenemedical.com/CongressDocuments/Tam_BGB-11417-101_ASH_Presentation_2023.pdf This is a combo trial, sonrotoclax and Zanubrutinib on treatment...

https://www.beigenemedical.com/CongressDocuments/Tam_BGB-11417-101_ASH_Presentat...

PulsedTherapy

•2 days ago

14 Replies

6 months after diagnosis, ALC going up?

Hi everyone, I was diagnosed with CLL in early Dec 2023. I am not fully asymptomatic as one of my underarm lymph nodes is mildly enlarged. I also think I feel...

Hi everyone, I was diagnosed with CLL in early Dec 2023. I am not fully asympto...

sleepyjean75

•2 days ago

29 Replies

To Bone marrow biopsy or not to bone marrow biopsy that is the question.

Hi everyone, I’m not sure if this is the right forum. Previously it was thought I had pernicious anaemia (I’m in that forum too) but then they weren’t sure. I...

Hi everyone, I’m not sure if this is the right forum. Previously it was thought...

Tellingbones

•3 days ago

12 Replies

First Treatment for Richter’s Today

I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL....

I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for...

ReneeSusan

•3 days ago

34 Replies

Was Just Approved For A Grant To Pay For My Monthly Insurance Premiums.

I've always known the Leukemia Lymphoma Society offered grants for copay assistance, but just recently discovered the grants can also be used to pay for...

I've always known the Leukemia Lymphoma Society offered grants for copay assista...

Luv2Craft

•5 days ago

11 Replies

zanubrutinib

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. This time they are treating her with Zanubrutinib. She’s been on it for 2 weeks...

hi, The person I’m caring for has had non-Hodgkin b cell lymphoma 3 times. Thi...

Buster2024

•5 days ago

3 Replies

Month 21 of 24 Rituximab and Venetoclax

I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had...

I'm doing well with this treatment CLL wise with all bloods within normal range....

Fastbike14

•5 days ago

22 Replies

Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME

There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro'...

There's a long and challenging journey from microscope observations of cancer ce...

AussieNeil

Administrator•5 days ago

9 Replies

W&W SEPSIS

My twin brother is on watch and wait. He had a minor day case operation to remove a small cancerous lump. 36 hrs later he was readmitted with sepsis. He's...

My twin brother is on watch and wait. He had a minor day case operation to remov...

Fastbike14

•6 days ago

27 Replies

Update on skin issues

Got a phone call to have more biopsies today and went in to dermatology where they took six swabs for bacterial and fungal from different body sites . And 4...

Got a phone call to have more biopsies today and went in to dermatology where th...

cartwheels

•7 days ago

1 Reply

imbruvica and no side effects 2 yrs strong

i was diagnosed in 2017 cll.I been on imbruvica since march 2022 and i must say my numbers are great,im healty,work every day and see my oncologist every 3 mos.

i was diagnosed in 2017 cll.I been on imbruvica since march 2022 and i must say ...

Rhodeguy

•7 days ago

8 Replies

Fake scientific papers-part three - the continuing rise of AI

In part two I reported on the ways in which publishers, aided by a small but dedicated band of sleuths, are countering the threat of plagiarised and phony...

In part two I reported on the ways in which publishers, aided by a small but ded...

bennevisplace

•8 days ago

10 Replies

Richters Transformation Update- Treatment

I met with the local oncologist today to do treatment plan for confirmed Richters. I will be admitted on Monday to start 5 days of DA EPOCH - R with...

I met with the local oncologist today to do treatment plan for confirmed Richter...

ReneeSusan

•8 days ago

53 Replies

Swollen Lymph Nodes

I'm on year eight of W & W and was curious has to number of swollen lymph nodes you folks are experiencing. It has become something of a joke for us (my...

I'm on year eight of W & W and was curious has to number of swollen lymph nodes ...

StobiMan

•9 days ago

7 Replies

Blood test results

Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 platelet 123 rbc 4.38 monocyte 2.5 wbc 79,2 slowly increased every 6 months love to...

Hi w and w six years, numbers I am concerned about lymphocyte count 72.7 plate...

Feavers

•10 days ago

6 Replies

first hike of summer

Awe what a beautiful day in the mountains. After a URI requiring 5 weeks of antibiotics and 3 surgeries I made it out for a fairly rigorous hike based on my...

Awe what a beautiful day in the mountains. After a URI requiring 5 weeks of ant...

skipro

•11 days ago

40 Replies

Recent Chest CT scan to check for SLL progression, June 7, 2024 (part 2 of 2 posts)

IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd appreciate your words of wisdom, encouragement, and advise. Treatment, it...

IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd...

bagelstreet225

•11 days ago

33 Replies

Recent CT abdomen and pelvis scan to check for SLL progression, June 7, 2024 (part 1 of 2 posts)

I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I believe, is warranted. I'll see the hem/onc on June 20, 2024. I'd greatly...

I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I...

bagelstreet225

•11 days ago

Anyone had an iron infusion

My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for...

My husband has CLL and has a problem with low B12 and folate. His ferritin is al...

Noelnoel

•12 days ago

17 Replies

Wow! My lymphocytes got crushes

I have been on Acala for a month where my lymphocytes have been in the 200’s and just finished my first 100mg and 900mg of Obin back to back. Holy crap, my...

I have been on Acala for a month where my lymphocytes have been in the 200’s and...

Mining_Guy

•12 days ago

14 Replies

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Posts - CLL Support | HealthUnlocked

CLL Support

when to treat?

abnormal colonoscopy

STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)

Pure red cell aplasia

Gallbladder removal with low platelets

Grandads boys

Importance of CLL Specialist

Continued Journey

Complete Remission

MRD - Flow test compared to clonoSEQ

2nd gen BCL-2 inhibitor in trials and looking promising -- Sonrotoclax (BGB-11417)

6 months after diagnosis, ALC going up?

To Bone marrow biopsy or not to bone marrow biopsy that is the question.

First Treatment for Richter’s Today

Was Just Approved For A Grant To Pay For My Monthly Insurance Premiums.

zanubrutinib

Month 21 of 24 Rituximab and Venetoclax

Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME

W&W SEPSIS

Update on skin issues

imbruvica and no side effects 2 yrs strong

Fake scientific papers-part three - the continuing rise of AI

Richters Transformation Update- Treatment

Swollen Lymph Nodes

Blood test results

first hike of summer

Recent Chest CT scan to check for SLL progression, June 7, 2024 (part 2 of 2 posts)

Recent CT abdomen and pelvis scan to check for SLL progression, June 7, 2024 (part 1 of 2 posts)

Anyone had an iron infusion

Wow! My lymphocytes got crushes

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