PSP Association | HealthUnlocked

Where do I start……. I cannot believe this network exists and how I wasn’t provided this information. Diagnosed in July 2021 and like most battled with the...

Hello everybody. My father, who has a PSP, still maintains some independence. He undergoes physiotherapy twice a week and is taking levodopa. Lately he has...

Well, I've been reading posts here for the last few years and, although informative, I didn't think I'd want / need to post myself ... How things change! My...

Quite a while ago someone posted about a documentary on Linda who is suffering from PSP can anyone help me find it on you tube please

My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed...

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumonia, urine infection, bowl infection, COVID and a further chest infection. He is...

Hi everyone, I’m new to this forum so just wondered whether anyone could offer any words of wisdom. My dad was diagnosed with PSP at the beginning of the...

My husband was recently diagnosed with PSP, which comes on the tail of a stage 4 cancer diagnosis (he's in remission as of now). We're both already deep into...

My husband is suffering with chronic constipation. I am sure this is contributing to his mood, not sleeping and restlessness. He seems more confused not...

My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat ,...

Hi My husband is chronically constipated due to PSP. It’s been a major issue for about 2 years but it’s getting worse… he was averaging once every 5 to 8...

my husband is having a PEG fitted tomorrow. The nurse has given us two options for feeding - either a pump that runs all day or bolus (?) feeds 4 or 5 times a...

I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for...

My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this...

Hi , just wanted to tell you my husband who has PSP, has just been awarded fully funded CHC funding .I’m not going to say the process isn’t difficult or...

I was recently diagnosed with PSP which explains the many falls I have been having. I have had problems with imbalance/falls for around 2/3 years, and have...

My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞...

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Cream Challenge, getting the manuscript ready for publication earlier this week and...

REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal...

I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle...

This is a great network and as I said previously I really do wish that I realised this existed since my dad’s Diagnosis. But looking forward I am curious to...

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating. When he is asleep, sometimes he does hand movements, calls out the strangest...

Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using...

I found out today that the fourth installment of the PSP Chronicles is available on Amazon so I've ordered my copy Beyond... The PSP Chronicles...

This is hard work. It's 90+ degrees without humidex, but someone has to do it😆. I call this creation Strawberry Fields Forever. Timtations Berry...

Great article....

Has anyone any experience with Speakunique, please? My wife has just banked her voice and is waiting for the PSPA funding. On the Speakunique website it...

PSP-CBD Awareness Week UK Day 3 Timtations Perfect Pecan... Perfect Pecan Sundae #thinkicecreamthinkpspcbd Enjoy, Tim

My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen...

My husband died in hospital earlier this year (2024). He was diagnosed with PSP just before Christmas. Like a lot of people, his outpatient care was blighted...