Recorvery from spinal cord compression - SHARE Metastatic ...

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Recorvery from spinal cord compression

Still on recovery room since Friday for spinal cord decompression(T10-t12). I don’t know how it happened quickly I just had some serious back pain irradiated on my lower abdomen. Can’t pee, can’t poo, can’t walk. I don’t know how will be my quality of life after that, I’m depressed I need some good report to go ahead. Thanks

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life2990

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8 Replies

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nonna704 days ago

My prayers are with you. I'm so sorry this scary thing has happened. I am very glad you are in the hospital being cared for! Can you move your legs? How about your arms? I hope you have someone beside you frequently. Would it help to request a student to be with you? If you'd like, I'd be willing to go on the chat feature and listen. I'm a retired licensed clinical social worker. Donna

life2990 in reply to nonna703 days ago

Thank you Donna. They help me a lot at MSK NY. I’m feeling so much better now.

nonna70 in reply to life29903 days ago

I'm so glad!

Dragonfly24 days ago

though I’m not sure if this is comparable, I had spinal stenosis surgery in March and the results were life changing. It was L3-4 so lower than your injury. Nevertheless surgery was done post haste and I could walk again without pain… that is until the iliac fractured. Regardless don’t give up hope. Your situation is in need of intervention! And I’m praying you will get it asap ! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Tantalon7211 in reply to Dragonfly23 days ago

Just wondering what the treatment is for your fractured iliac - are you able to walk now

I have bone Mets progressing on the iliac bone and could lead to a fracture - did you get treated and able to walk ok

Hopefully all is well - it’s a worry with the hip and fractures

Dragonfly2 in reply to Tantalon72113 days ago

Hi..I had posted separately regarding my iliac fracture but right now the surprising advice from the APRN was to continue light weight bearing walking and yes I could swing my golf club a# long as I limited the walking. I’m waiting to hear from the orthopedic oncologist but apparently this is not an uncommon event that sometimes heals on its own with meds like Zometa to help it. Yes it’s a worry…but I was jus5 glad it wasn’t because the cancer was rampant…🙏🙏🙏

life2990 in reply to Dragonfly23 days ago

The neurosurgeon said to me some PT at home I should be able to walk again. One day at a time

Aprilfoolz13 days ago

I'm so sorry you had this happen but am relieved you had surgery asap . Continue to heal and know we are all with you , praying for your recovery . One day at a time for sure .