Sjogren's Support | HealthUnlocked

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX but it proved toxic for me so had to stop after 1st dose of 20mg then was...

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. I’m finding it is impacting food I am eating. It’s really bad at the moment....

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans &...

hi all- I got diagnosed with a couple other autoimmune diseases recently and in addition to that, my early sjogrens panel just came back positive. They...

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder problems such as pain and frequency of urine for over 15 years .Does anyone else have...

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry eyes but not to the point that I need drops. I do experience fatigue and...

Good morning, having major issues with my present rheumatologist, he seems very disinterested in me as a patient. Was diagnosed with Sjorgens, PMS and GCA in...

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I had a reverse shoulder replacement last Monday. Surgeon said the op went well, and I have a follow-up appointment in ten days. I've had a tough week but...

Does anyone else have a very sore tongue. I am wondering if it's connected to me taking Apixaban a blood thinner. Or connected to Sojrens.

I have sojrens and have a very painful tongue on one side it feels bruised and like someiunder the flesh even though there is no lump. Does anyone else have...

Does anyone else that has Sojrens have a sore tongue and feels like a lump when anything touches it just on one side. I have lichen planus as well.

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Does anyone with sojrens suffer with very bad night sweats. I have for a while mine have got so bad that I change my top sometimes 3 times. I am 75 so...

Does anyone else get jaw and neck pain on the left side with sojrens and sore tongue?

Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg...

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Over the past few years I have had so much dental work because my teeth had lost...

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 25 in 9 months seems very fast progression.

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist....

Does anyone have a doctor who prescribed something other than Hydroxychloroquine which helped your symptoms?

diagnosed with PBC and after some insistence was screened then was diagnosed with sjorgrens. I’ve read up a lot and that liver problems can be an extrglandular...

I had a lip biopsy 2 weeks ago , to test for Sjogren’s ,but I am regretting it so much my bottom lip is half numb and tingling and I have a huge lump where...

Anyone have trouble with their trigeminal nerve? Could you please let me know your symptoms? Has it been progressive? I have a one-sided numbness and...

Morning I did rant a bit at the GP's office...my eyes look and feel really awful, told them these are the eye drops I need prescribed I am not going to go...

Good morning all, I am very new to this group.I was diagnosed with Sjorgans syndrome in August 2023, but very obvious it has been 'hanging' around for a while...

Anyone else having trouble obtaining these ?

Hi everyone,I've had dry eyes and mouth etc for about 10 years. About 8 years ago, a rheumatologist tested my bloods, which were negative, so he said I don't...

Hi all, I have suffered with Rheumatoid Arthritis and Lupus for over 40 years. I started having a really dry mouth when I was put on OxyCodone for pain relief....

Hi all, I wondered if anyone has hone through what I have been going through, sorry for long post. Last october I stopped using Methotreaxte injections as they...

Hiya, I get completely shattered like a flare and emotional just after a period. Is there anything that has helped anyone and is this normal with sjogrens type...