MPN Voice | HealthUnlocked

I just need some good vibes. Feel like my last hurdle before I can breathe is tomorrow. I go back to MD Anderson. I am hoping for good labs and another see...

Hi.I have been on Hydroxy for almost 9 yrs 1500 daily 1000 sat 500 sun. No side effects Controlling platelets 500 -700 Also on 75mg asprin I queried long...

Edit…. I spoke with my MPN Team on Monday and took their advice. I’m feeling much better now and thanks for your messages etc. Hello, I’m having a...

This is just a bit of a bright note. I just finished a bit of a holiday prior to a 5-day conference in Brussels, Belgium. I had to fly with the Besremi then...

I’d be grateful for any advice or guidance on starting Interferon for ET CalR mutation. I was diagnosed with ET approximately 12 years ago when I was 57. I...

Hello My husband had his 6 month check and platelets were 946. They seem to be going up since he has been diagnosed in 2022. Is this the trend do they tend to...

I just had my routine 4 month bloodwork and my platelets are normal at 399. They were also normal in March at 396. I haven’t had normal platelets in about 10...

My now long suffering wife, had another blood test this morning, and told to go home afterwards and await the results. The results were Hgb 79 platelets 4 yes...

Wondering how most feel about having this? I have had all that have been offered,and have always had the phizer vaccine,but this time all I can find is the...

Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me...

Did your fatigue diminish when you switched from hydroxyurea to a JAK2 inhibitor such as ruxolitinib? Published studies show that most patients who take JAK2...

Good morning everyone! My name is Melis. I'm a 38-year-old female who found out I'm Jak 2 positive. I have an appointment with the hematologist on 06/11. Does...

Microplastics Are Everywhere. Here’s How to Avoid Eating Them... Microplastics and nanoplastics are everywhere. The teeny tiny pieces of plastic have...

I was diagnosed three years ago with ET and started on hydroxycarbamide. The doctor told me very abruptly that I had a blood cancer and would have to take...

I am nearly 79 and have been dx with ET since 2021 and on hydroxycarbamide and low dose aspirin. I got shingles in June 2022 and it was pretty awful for about...

Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning....

Labs were almost identical, hct 38, wbcs 2.5, plt 177, neut 1.6. Liver and kidneys were good! Going to just drop to 200mcg as hct has been going down for...

Any top tips for managing localised reaction at interferon injection sites please? (raised red circles, about 4cm wide and itchy). Will dig out baggier...

Despite a healthy life style (healthy diet , regular exercise and 8-9 hours sleep) fatigue comes on fast and strong most afternoons. Eyes become heavy and...

Hi, just looking for some advice and thoughts from those of you with knowledge or experience with Rux for PV. I have been on it now for approx 8 weeks. It...

anyone else have problems with itchy rash on feet whilst taking hydroxycarbamide ?

I started Besremi two weeks ago. My first dose was 100 mcg. I am supposed to take my second dose today, and increase it to 150mcg. The thing is, I had a BMB...

When the vaccines for covid first appeared I received the AstraZeneca type. Two or three weeks later I ended up in hospital with unbearable headache and not...

I am on 2 low-dose aspirin and therapeutic phlebotomies as needed (sometimes every 3 weeks and sometimes ever 3 - 4 months). Symptom burden has drastically...

I was diagnosed with ET six months ago and am on aspirin and hydroxy with few side effects so, other than occasionally getting over tired, life as a retiree...

Well after getting a call to get to A and E ten days ago because her platelets were at 4 and Hgb of 79 she had two bags of RBCs and one bag of platelets within...

Good news on the labs today. Since the phlebotomy on March 26 my HCT is staying below target. It actually dropped some more this time to 41.4%. LYMPH and...

Hi all, update on marsked PVYesterday had the first appointment at Guys, wow the difference in approach is palpable!!! After developing neuropathy in both...

Hello. A disparate couple of questions for you with longer term experience of PV please? I'm having a slightly uncomfortable breathing symptom. Have had it...

Hi. Diagnosed at 16 and I'm now 45. I've had various medications throughout, some ok, some not so great. They've either made me miserable or become tolerated....