PMRGCAuk | HealthUnlocked

PMRGCAuk

20,593 members • 38,694 posts

Milk - what works best?

This may already have been covered but I’d love to know about other people’s milk journey. We know we need calcium but should the milk we drink be full fat...

This may already have been covered but I’d love to know about other people’s mil...

Thelmarina

•3 days ago

89 Replies

methotrexate

I have been on prednisolone since last August for GCA/PMR and am getting down to lower levels (10mg). Rheumy wants to add methotrexate as need to get off...

I have been on prednisolone since last August for GCA/PMR and am getting down to...

bookbear68

•3 days ago

69 Replies

Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab

I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and...

I've recently had spinal or vertebral compression fractures and am now talking t...

tangocharlie

•9 days ago

90 Replies

Medications and tiredness

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the symptoms to old injury. I allowed the flare up to get to the point where it...

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the ...

MarkC1971

•2 days ago

41 Replies

Discharged by rheumy!

I went to my appointment yesterday, full of tales of woe about all my various health problems this year which caused a delay in my tapering. I'm on half a mg...

I went to my appointment yesterday, full of tales of woe about all my various he...

Broseley

•7 days ago

59 Replies

Hearing loss and PMR ?

I had a hearing test yesterday and was very disappointed to find out my hearing has deteriorated quite a lot since my last test three years ago. I am now...

I had a hearing test yesterday and was very disappointed to find out my hearing...

simps999

•1 day ago

25 Replies

PMR/GCA Elevator Pitch

I’m 7 months into my pmr/gca experience and have yet to find a simple way to explain the condition conversationally. When friends and family, I usually say,...

I’m 7 months into my pmr/gca experience and have yet to find a simple way to exp...

PMRSkier

•9 days ago

57 Replies

Thank you to our volunteers!

It's volunteers' week this week and we want to thank all our volunteers who help across the charity. Here, on our forum, a big thank you to PMRpro and...

It's volunteers' week this week and we want to thank all our volunteers who help...

Fran_Benson

Partner•16 days ago

75 Replies

disastrous appointment with new nurse practitioner

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sneezing, etc. bright red fingers. Generally weak and lethargic, can’t walk too...

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sne...

Twopies

•3 days ago

34 Replies

BONE DENSITY BETTER. same machine. Yippee Skippy.

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. sometimes a couple times. for last year or year and 1/2 RESULT LUMBAR SPINE...

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. so...

yogabonnie

•4 days ago

38 Replies

Breathless

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even a very short walk or going up the stairs. The fatigue is also worse. I have...

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even...

Dinahmite

•5 days ago

38 Replies

Further developments in the 'back muscle strain' saga

Last October when changing bed sheets, I injured my back. Went to A & E in excruciating pain and they sent me off with a single dose of morphine deciding it...

Last October when changing bed sheets, I injured my back. Went to A & E in excru...

strawclutching

•23 days ago

81 Replies

Musings on stress relievers – I know what might help to alleviate stress, but why don’t I do them?

Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would...

Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most o...

ubaoz

•1 month ago

92 Replies

Covid vax?

I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?

I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want ...

Oshmar

•1 month ago

86 Replies

Too little Pred?

hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active,...

hello all- new here and am still working to understand PMR. I have a ton of bloo...

Hwle

•2 days ago

21 Replies

Ibruphen tablets v gel

hello all well, here “up north” earlier this evening we had the most horrendous thunderstorm lasting 30 mins - and with huge hailstones -and, I kid you not,...

hello all well, here “up north” earlier this evening we had the most horrendous...

Doraflora

•26 days ago

77 Replies

Dexa scan refusal

Hi, this is my first post after being diagnosed with PMR November 2023. The information from everyone on this forum has been invaluable, thank you. I started...

Hi, this is my first post after being diagnosed with PMR November 2023. The inf...

Yorkgirl2

•1 month ago

88 Replies

Free of polymyalgia

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took...

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I ...

Rosshigh

•23 days ago

69 Replies

Tapering

It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and...

It is some time since I posted anything about my PMR journey, but want to share ...

Kiwisufferer2019

•7 days ago

35 Replies

Hike in T-Score due to steroid use. Worrying.

Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan...

Hi All, just yesterday I finally got results from my DEXA .scan which I had don...

lkcreedon

•8 days ago

36 Replies

PMR symptoms and Steroid sensitivity and withdrawal

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery plan is not working. I had about 10 days at the beginning of my 15 mg start on...

I updated my profile a couple of weeks ago as I am feeling that the PMR recovery...

Dresdenplate

•17 hours ago

11 Replies

You were right, of course, Dorset Lady!

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my primary care doc (I think you there refer to this one as a GP) who immediately...

I upped the dosage back to 1 mg yesterday and felt way better. I emailed my pri...

Paulagcl

•14 hours ago

10 Replies

Oh no not me again!😱Update on TCZ and LFT results

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro and DL.Probably bored everybody else!😂Anyway,phonecall from rheumys...

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro ...

Angelsmummy

•4 days ago

24 Replies

Covid vaccine or not ?

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out there ? My last jab was October 2023 , I got covid in December. Given I got it...

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out...

Pastamama

•20 days ago

56 Replies

Double vision and PMR?

I have in recent years become more and more bothered by double vision when I am tired/fatiged. Of course, it is worse during flare-up periods. Now it can be...

I have in recent years become more and more bothered by double vision when I am ...

krillemy

•22 hours ago

12 Replies

I/we did it! An update on my one-mile walk

I posted about a month ago about how I was going to a little bit of a walk to accompany a best mate who is battling Ovarian cancer and walking Hadrian's Wall...

I posted about a month ago about how I was going to a little bit of a walk to ac...

tangocharlie

•29 days ago

66 Replies

Statins in older patients and their benefits

There is, not surprisingly, a lot of discussion here about us taking statins and one of the points often made is that there has been little evidence of benefit...

There is, not surprisingly, a lot of discussion here about us taking statins and...

PMRpro

Ambassador•24 days ago

59 Replies

Swollen leg and knee pain

I was diagnosed with PMR and GCA in June 2021, having had symptoms since about 2016. I hadn’t found this forum then so my pred tapering to 10mg from the...

I was diagnosed with PMR and GCA in June 2021, having had symptoms since about 2...

Guilder

•7 days ago

33 Replies

Dysthermia (temperature dysregulation)

Does anyone out there have it? For me, it's basically that I get overheated very easily - typically in situations with high humidity and higher (but not...

Does anyone out there have it? For me, it's basically that I get overheated ver...

winfong

•3 days ago

22 Replies

Returning temporal headaches after stopping Tocilizumab, what to do ?

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache)....

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan onl...

ghost123uk

•17 days ago

48 Replies

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